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Latest news from the GM Trust

  • Click here to download our latest newsletter.
  • Click here for an article by Prof V. Dubowitz a GM Trust Scientific Advisor.
  • Click here for an article by Assistant. Prof.R. Cohn a GM Trust Scientific Advisor.
  • Scientists and Clinicians - click here to read about our invitation to tender for research.

 

About Us

For four and a half years we watched him thrive and grow, enjoying the milestones he achieved with amazement and wonder. Concerns only emerged when Gavriel started to get nightly leg cramps, however a paediatric consultant quickly put our concerns to rest. When the pain continued a visit to the physiotherapist highlighted his enlarged calf muscles and we were referred for further tests. Results from a simple blood test lead quickly to him having a muscle biopsy and just a few weeks later on the 1st August 2006 we were hit by the devastating news that our son had Duchenne Muscular dystrophy. Read more

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About DMD

  • Duchenne Muscular Dystrophy (DMD) is a progressive & fatal muscle-wasting disease.
  • It occurs in 1 in every 3500 male births.
  • 100 children a year are born in the UK with DMD.
  • It is the biggest genetic killer in the UK.
  • By age 11 most boys are confined to a wheelchair.
  • Average life expectancy, even for boys treated for DMD is mid/late 20s.
  • There is no cure at present. Read more


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