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For four and a half years we watched him thrive and grow, enjoying the milestones he achieved with amazement and wonder. Concerns only emerged when Gavriel started to get nightly leg cramps, however a paediatric consultant quickly put our concerns to rest. When the pain continued a visit to the physiotherapist highlighted his enlarged calf muscles and we were referred for further tests. Results from a simple blood test lead quickly to him having a muscle biopsy and just a few weeks later on the 1st August 2006 we were hit by the devastating news that our son had Duchenne Muscular dystrophy. Read more
About DMD
- Duchenne Muscular Dystrophy (DMD) is a progressive & fatal muscle-wasting disease.
- It occurs in 1 in every 3500 male births.
- 100 children a year are born in the UK with DMD.
- It is the biggest genetic killer in the UK.
- By age 11 most boys are confined to a wheelchair.
- Average life expectancy, even for boys treated for DMD is mid/late 20s.
- There is no cure at present. Read more
Events
DMD News
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- Formby photographer Chris Winstanley to have images on display at Houses of ... - Formby Times
- CureDuchenne to Host Inaugural Duchenne Muscular Dystrophy Summit - Earthtimes (press release)
- Roman invasion to conquer charity - Sunderland Echo
- Photographic work by man paralysed by Duchenne Muscular Dystrophy chosen for ... - Response Source (press release)